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Caitlin Piccirillo
Apr 21, 20231 min read
The DESSH Foundation hosts first-ever DESSH Clinic at Washington University in St. Louis
Original story can be found at First-ever DESSH clinic (wustl.edu).
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Caitlin Piccirillo
Apr 21, 20232 min read
Why should my loved one participate in patient research?
You may find the answer to this question is an obvious one: to advance science in order to cure DeSanto-Shinawi Syndrome. On the other...
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Caitlin Piccirillo
Apr 21, 20231 min read
CZI's Rare As One Project Accepting Grant Applications!
The DESSH Foundation is proud to announce it will create a team of DESSH parents to pursue the second cycle of the Chan Zuckerberg...
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